Who We Are
Parent Carers of Autistic & Neurodivergent Children
We are a team of parent carers of autistic and neurodivergent children who understand the challenges faced in navigating the journey to diagnosis and getting the right support in place for our children. We come from professional backgrounds that understand the systems, and together with our experience and training we have come together to share our skills to make other people’s journeys easier. In January 2024, Autism Arena CIC, a non-profit community interest company, was founded to help parent carers of autistic children navigate health & social care, education and leisure.
Our backgrounds are in being a former General Practitioner (Dr Gillian Rogers), a Social Worker (Nikki Wilson) and a Teacher/SENDCo (Edwina Subritzky). We consider each child holistically and help parent carers better understand autism & neurodiversity, support them in their understanding about behaviours and needs, what adjustments can be made and how to refer on to the appropriate healthcare professional if needed. We help parent carers become stronger advocates for their child and understand what their rights are. We can assist with school adjustments and accessibility arrangements in various settings. We do this so that each child’s needs will be understood and met as quickly as possible, to help them reach their potential and gain more positive experiences in life.
Healthcare
- Reasonable Adjustments from Healthcare Services
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Leeds Teaching Hospitals adjustments and autism passport:
The Leeds Teaching Hospitals - Learning Disability Service (learningdisabilityservice-leeds.nhs.uk) -
Mental Health in Leeds:
Home - MindWell (mindwell-leeds.org.uk) - Neurodiversity information hub - MindMate
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Dynamic Support Registers:
NHS England » Dynamic support register and Care (Education) and Treatment Review policy and guide - Child Development and Neurodisability
Education
Racially Diverse Communities
Carer wellbeing and peer support
We recognise the importance of being part of an understanding and supportive community,so we wish to reduce the isolation and loneliness that parent carers of autistic & neurodivergent can experience. ‘ We understand how challenging it can be when children are unable to play or socialise in the same way as their peers, and from a carer perspective, this makes it more difficult to build connections and an understanding support network. We understand that experiences of childhood are not mainstream. By holding peer support events we wish to reduce the barriers for parent carers to feel part of a supportive community. Our on-line peer support events are aimed to be more accessible to a wider range of parent carers.
Social care